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https://hdl.handle.net/11499/51113
Title: | Internalized Stigma in Hidradenitis Suppurativa: A Multicenter Cross-Sectional Study | Authors: | Bilgiç, Aslı Fettahlıoğlu Karaman, Bilge Demirseren, Duriye Deniz Çınar, Levent Kacar, Nida Ermertcan, Aylin Turel Bülbül Başkan, Emel Guven, Munevver Yazici, Serkan Akbulut, Tugba Özkök Ucmak, Derya Ataseven, Arzu Temiz, Selami Aykut Engin, Burhan Akturk, Aysun Sikar Saricaoglu, Hayriye Ozden, Müge Güler Mammadli, Kifayet Durmaz, Koray Gulbasaran, Fatmagül Kilinc, Fadime Ozden, Hatice Kaya Gonulal, Melis Balci, Didem Didar Cemil, Bengu Cevirgen Solak, Sezgi Sarikaya Selcuk, Leyla Baykal Yavuz, Göknur Ozaydin Yavuz, Ibrahim Halil Donmez, Levent Alpsoy, Erkan |
Keywords: | Hidradenitis suppurativa Internalized stigma Quality of life Psychodermatology Mental-Illness Acne-Vulgaris Stigmatization Reliability Psoriasis Validity |
Publisher: | Karger | Abstract: | Background: Hidradenitis suppurativa (HS) causes significant physical, social, and psychological burdens. Internalized stigma, acceptance of negative attitudes and stereotypes of society regarding a person's illness, has not been studied previously in HS. Objectives: The objective of this study was to investigate the internalized stigma state of HS patients and identify the factors affecting it. Methods: This multicenter, prospective, cross-sectional study included 731 patients. Internalized Stigma Scale (ISS), Hurley staging, Physician Global Assessment, Dermatology Life Quality Index (DLQI), Skindex-16, Beck Depression Inventory-II (BDI-II), and Visual Analog Scale (VAS)-pain score were used in the study. Results: The mean ISS value (57.50 +/- 16.90) was comparable to the mean ISS values of studies in visible dermatological and various psychiatric diseases. A significant correlation was found between the mean values of ISS and all disease activity scores, quality of life measures, BDI-II, and VAS-pain scores. Obesity, family history, low education and income level, vulva/scrotum involvement and being actively treated are significant and independent predictive factors for high internalized stigma in multivariate analysis. Conclusions: HS patients internalize society's negative judgements, which may create a profound negative effect on access to health care. Therefore, in addition to suppressing disease activity, addressing internalized stigma is fundamental for improving health care quality. | URI: | https://doi.org/10.1159/000529194 https://hdl.handle.net/11499/51113 |
ISSN: | 1018-8665 1421-9832 |
Appears in Collections: | PubMed İndeksli Yayınlar Koleksiyonu / PubMed Indexed Publications Collection Scopus İndeksli Yayınlar Koleksiyonu / Scopus Indexed Publications Collection Tıp Fakültesi Koleksiyonu WoS İndeksli Yayınlar Koleksiyonu / WoS Indexed Publications Collection |
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