Please use this identifier to cite or link to this item: https://hdl.handle.net/11499/58671
Title: Consensus on Transition Care for Juvenile Idiopathic Arthritis: a Delphi Study With Youth, Caregivers, and Health Professionals
Authors: Sahin, Nihal
Baykal, Gulcan Ozomay
Acari, Ceyhun
Aydin, Pinar Ozge Avar
Baba, Ozge
Baglan, Esra
Sozeri, Betul
Türkuçar, Serkan
Keywords: Adolescent
Arthritis
Chronic Disease
Delphi-Study
Juvenile
Transition To Adult Care
Publisher: Bmc
Abstract: BackgroundThe field of transitional care for chronic conditions in adolescents, notably juvenile idiopathic arthritis (JIA), is rapidly growing. Transitioning these patients to adult healthcare systems presents significant challenges in practical implementation. Consequently, it would be appropriate for each country to develop a transition program tailored to its specific infrastructure. To pursue this goal, a Delphi study was conducted to identify the key components of transitional care in JIA.MethodsThree panels and two rounds were held consisting of adolescents and young adults, parents, and clinicians (pediatric or adult rheumatologists). As a result, feedback on acceptance of the key statements of transitional care was obtained using the Delphi method.ResultsOut of 102 contacted, 88 (86.3%) participants responded to the Round 1 survey, which included 48 clinicians, 20 youths, and 20 parents. In Round 2, the number of clinicians dropped to 29, while the number of youths and parents remained constant. Based on expert opinions, 29 statements were selected for the first round. Statements that received >= 70% approval in the first round advanced to the next round. Sixteen statements did not achieve >= 70% approval. Of the remaining, 12 were reviewed in the second round, while four were excluded.ConclusionAlthough consensus has been reached on the basic transitional care issues for JIA patients, several issues still need to be agreed upon. Acceptance and applicability of the final 20-item checklist in clinical practice are critical for advancing JIA transition care in Turkey.
URI: https://doi.org/10.1186/s12969-024-01047-2
https://hdl.handle.net/11499/58671
ISSN: 1546-0096
Appears in Collections:PubMed İndeksli Yayınlar Koleksiyonu / PubMed Indexed Publications Collection
Scopus İndeksli Yayınlar Koleksiyonu / Scopus Indexed Publications Collection
Tıp Fakültesi Koleksiyonu
WoS İndeksli Yayınlar Koleksiyonu / WoS Indexed Publications Collection

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